Monday, August 30, 2010

Runny nose and coughs

Well, it happened. Landon got his first school cold. That didn't take long, huh? :) All last week he came home tired and didn't really want to eat much. I figured at first he wasn't really hungry, but then realized when he started sneezing that it was something more than that. On Thursday, he started running a temperature so we kept him home from school on Friday. We visited Dr. LaCroix just to make sure, and she reassured us that it was just a cold.

When I email Landon's teacher on Thursday evening to let her know that Landon wouldn't be at school on Friday, she told me that something was going around the classroom. Two out of three of his teachers (his teacher and his teacher's helper which they call "paras") went to the doctor on Thursday afternoon and were told they have a virus. Some of the kids had runny noses and were coughing. All in the first full week of school! :)

Over the weekend Landon started feeling much better and wasn't running a temperature anymore so I sent him to school today. I could tell he was excited to get back. :)

Now, of course, I have the cold that Landon shared with me...goody!...and with not very many medications to take, it's not very fun. :(

Monday, August 23, 2010

Our first report card

Landon did great for his first week of preschool. The teachers said he was really sweet and that he did really well...PHEW!!! Thank goodness! I was worried he was going to have issues with sitting still, but apparently he likes to only be a wiggle worm with me. Goodie for mom!

Anyways, I've included a picture from the report on the first day of school. The teacher sends one home with Landon everyday. As you can see he had a "great" day!! Hooray for my preschooler!!!

Thursday, August 19, 2010


Well, my little man is officially a preschooler! He was so excited this morning to go to school. He kept asking me when we were going to get in the car....even before breakfast. :) He did a lot of excited squealing when it was actually time to go.

Yesterday we went to the open house for his preschool and the kids got to come in and explore the classroom. Landon immediately found the cars and started playing. He shared some of the cars with another little boy named Christian who was being a little shy. After more roaming around, Landon found the book corner where there was a book about cats. He wanted to take it home with him and I had to tell him that he could play with it while he was at school, but it was Mrs. Sanders' (his teacher) book. He put it back, but continually asked for it last night.

This morning when we entered the classroom, I was trying to get him to pay attention to putting his backpack on his hook, but you could tell he was looking around to find the book. :) The kid doesn't forget anything!! :) I spent some time with him trying to get him to sit on the rug for circle time with the other kids, but he wasn't having it. I had to leave so they could start class, and I noticed that he had found the book and was walking around with it. He's so persistent!!! :)

Landon is so excited to go to school! He didn't even want to take pictures!

A picture with Mom before we left...he's asking about the cat book, if you are wondering what he's doing. The kid has a memory like an elephant!

Waiting in line out in front of the preschool to go inside. As you can tell...he's ready!

I got in my car after dropping him off and had no clue what to do with myself. I thought about crying, but I didn't feel the need to. Landon made it too easy for me not to. I think he was really ready to start school and be with other kids. I'm so glad we did this for him.

Heidi (his nurse) told me he did great in class today!!!! I was so excited to hear that after I left they were able to corral him to the circle to join the other kids. When I picked him up he had a picture of Lightning McQueen that he had colored and was so excited to show it to me. :) His teachers said he did great and he even had a great report in his backpack from the teacher. :) I was so proud of him!!

A picture of Landon at preschool with his name tag on. :)

Now, we're off to therapy with Ashley...wish us luck! :)

Tuesday, August 17, 2010

The last hoo-rah!

On Thursday my little man will officially be a preschooler!! I think he's really going to like it, although I'm starting get nervous. Not because I don't think he will like it or have fun, but because I'm leaving my little boy at preschool. I've never been away from him a day in his life. I think I'm going to have more separation anxiety than he his.

To celebrate the last few days of "freedom" we decided to take Landon to the Children's museum. As I'm said in the past, they have something called "Carefree Kids" night for children who have compromised immune systems. It just so happened to be yesterday evening, so we took Landon to have a little fun.

We've been watching a lot of the movie "Bolt", and Landon has grown to love anything with a dog on it. The Children's Museum had Clifford the Big Red Dog for their exhibit this time. Landon LOVED it!!!!! We took him up there first thing, and he didn't want to see anything else. We stayed in that exhibit for an hour and a half just letting him run around and play. He had so much fun looking at everything. Of course, I took lots of pictures. :)

He was so excited! Notice his feet...he just couldn't get there fast enough!

He found this book, which he fell in love with. We came back to see the book a few times...just a few. :)

He liked this little "sandbox". It had a sand castle made from stacking different shapes on top of one another.

Asking Dad for a little assistance...

Clifford's dog bowl full of bones.

Had to go back to check on the book...

First he saw the rug...then he saw Clifford on the rug...then he noticed the letters on the Clifford rug...It made for a very excited Landon. :)

Touching Clifford's big nose

Delivering (or stuffing) some mail into the mailbox

Back to look at the book.....again...

Delivering more mail

Takin' a cruise...

Don't be scared Dad, I got this!

Oh dad! Stop looking so worried...I don't even have to look, see??

Landon was trying to pull the car. He didn't understand why it didn't work the same way that his little cars at home do.

Back to the book...again. Note the excitement on my face. :)

Hungry Landon??

Playing the bongos...

As you can tell, Landon had a lot of fun and didn't want to leave. One of the girls that was working there remembered us from the last time we came to Carefree Kids. Her and I were talking when we were leaving and I made a comment to her about the gift shop not being open. She asked us if we were looking for something in particular and Braydon just mentioned that Landon loves books. We were hoping they had some Clifford books to remember the occasion by. She said she would be right back, left, and came back with 5 different Clifford books for Landon to take home. She said that Scholastic Inc. (a publisher of a lot of children's books) gave them a bunch of books to give out to kids. Landon was the lucky one that got 5!! :) It made Landon's night and he thanked her for them. Of course, he HAD to sleep with them that night. :)

Well, I'll post some pictures of me crying on the first day of school later. ;) Just kidding....hopefully. He's gonna do great!!

Wednesday, August 11, 2010

Visiting with the baby doctor

I went in for my 16 week check-up today with Dr. NewMyer. Her nurse took my blood to do a quad-screening. For those of you that don't know what that is, they take some of my blood to determine if the baby has down's syndrome or spina bifida. Here's a link if you would like to know more. I wasn't excited about doing this test, not only because it doesn't really matter to me, but because they have to take my blood to do it. If you know me at all, I HATE needles and getting my blood drawn...with a passion. We decided to do it just so we know in case there is something wrong.

Other than that, my visit to the doctor was pretty uneventful. We listened to the heartbeat, but I didn't get to have an ultrasound. :( I'll be 20 weeks my next appointment on the 8th of September. That's when we will find out if this baby is a boy or a girl!!! We're excited to know. :)

Tuesday, August 10, 2010

Landon's hospital day

Landon's broncoscopy went really well yesterday. For the most part, the whole day went really well. Braydon and I were pretty anxious about seeing Landon after the procedure since he's normally not so pleasant after he wakes up from anesthesia. We told the nurse to prepare herself for a upset child when he came back. After all that talking about it, he proved us wrong. He came back so relaxed, not crying or anything. He laid in the hospital bed and watched "Finding Nemo". He started to get a little antsy when he realized he had an IV in, but the nurse recognized that he was uncomfortable with it and took it out. We knew he didn't need it anyways. After we got his normal clothes on he was all set to go. I was so proud of him. :)

Dr. Quinlan said that he was looking great. He took pictures while doing the procedure so that he could show us the progression. He said that Landon's mouth, throat and airway are definitely "abnormal" looking, but the progress that he has made from when he was a baby till now has been tremendous. He said that his tongue still has the little polyps on it, and that his tonsils are still really big, but everything else was looking really good. He's going to talk to a new collegue of his that came to Omaha from Children's Hospital in Boston. The doctors there work a lot with kids that have tumors and things like Landon. Dr. Quinlan is hoping that maybe he will have some ideas of some other things that we can try with Landon. He said he would like to remove Landon's tonsils, but after that put in a smaller sized trach and cap it off so Landon isn't breathing through it at all. He wants to see how well Landon would do breathing on his own without taking the trach completely out. He said that while Landon was under, he even took out his trach to see how he would do. He did great, so now Dr. Quinlan is wondering how much he really needs the trach anymore. I think we are more using the trach for a "just-in-case" scenario than anything else. After we cap the trach and Landon does well, we should be talking about decannulation (where we take out the trach all together)!!! YAHOOOOO!!!

I've included a diagram of the parts of the throat so it gives you a better idea of where things are in there. :) Hopefully, it helps you to understand a little better of what I'm talking about.

The only negative thing that Dr. Quinlan really talked about was Landon's epiglottis. He asked us about Landon's eating and how well he was able to handle swallowing without choking. We told him that from time-to-time Landon will cough when he's eating, but we've only really had one episode of Landon actually choking on food. (a hot dog, which was not fun, but what kid doesn't choke on a hot dog??) He said the reason why he was asking was because Landon's epiglottis isn't formed correctly from the lymphangioma and probably doesn't function the same way ours does. The epiglottis (as shown in the picture) is actually the part in your throat that covers your airway when you swallow. It, along with your vocal cords, are what protect your airway from food going into your lungs. Dr. Quinlan said that he thinks Landon's doesn't cover his entire airway. He said that Landon's epiglottis looks like a patient that has had theirs removed (from something like cancer). He said that patients that have theirs removed have to relearn how to eat, but it sounded like Landon had already overcome that. :)

All-in-all, the whole thing went well. There wasn't any shocking things that we found out. We pretty much knew everything he told us, but it was good to hear that things were getting better in there and not worse. :) The next step is to wait to hear from Dr. Quinlan about what his colleague says. If he doesn't offer any other solutions, we're probably going to move forward with the tonsillectomy and the smaller trach size. We may or may not wait till flu season is over to start that process....we'll see.

Saturday, August 7, 2010

Being a patient

On Monday, we are planning to have another broncoscopy done by Dr. Quinlan. He wanted to take another look into Landon's airway to see if there have been more significant changes. Since Landon can make noises passed his trach (even without his pasy muir on), I'm thinking that things will be looking nice in there. It will be an outpatient procedure, so we should be home that same night. Landon shouldn't be in too much pain. He normally sleeps a little longer for the 24 hours after, but is his normal self the next day. We just give him Tylenol the day of the procedure, because they say it's like having a sore throat. Since Landon obviously can't have a cough drop or something, he'll have to settle for a dose of Tylenol. :)

I'll keep everyone posted on how everything goes. The procedure is supposed to start at 9am and it shouldn't last any more than an hour. Just keep us in your thoughts and prayers that day please. It still makes me a little nervous putting Landon under.

Friday, August 6, 2010

Visiting Dr. LaCroix

Yesterday we visited Dr. LaCroix for Landon's 3 year old check-up. I's a little late. I called to make an appointment a week before he turned three, and the receptionist told me Dr. LaCroix didn't have anything open till the end of July and it was during Landon's nap time. I sighed and told her we would take it. I always have this problem with getting in to see Dr. LaCroix. She's always so busy. They offer for Landon to see one of her colleagues, but then it's frustrating cause I feel like I have to explain him and his "situations". Plus, Dr. LaCroix is so good with him, and she knows him so well. She really is worth the wait.

Anyways, a day before our appointment at the end of July, I called to see if someone had cancelled and they had an opening for earlier in the day. The receptionist told me that we weren't scheduled to see Dr. LaCroix because her schedule had changed, so we had to make ANOTHER appointment for the beginning of August at 6 in the evening! I didn't think they were even open then! It actually worked out really well going that late in the evening. They weren't busy, and we were seen pretty quickly. Dr. LaCroix even had time to sit and chit-chat with us. Maybe I'll make all his appointments that late in the day. :)

So, Landon is growing well. He is in the 50th percentile for his height and weight. As I've mentioned in the past, we've been going to get Landon weighed at the feeding and growth clinic at Children's. We got him weighed at the end of May and he was 31 lbs 6 oz. We got him weighed again a couple of weeks ago, and he was the exact same weight! Dr. LaCroix mentioned that she felt that we needed to add a couple of ounces a day back into his feedings of the Nutren Junior. I was kind of bummed, but understood why she felt like we needed to do that. She is trying to ensure that Landon stays on the growth curve the way he needs to. I had a feeling someone was going to tell me that with the way his weights were going. We're going to start incorporating more snacks and larger meals into his diet, so he will get some extra calories. He'll be fed a snack at preschool, so I think it will be a good habit to start. She told me to give him foods with good fats and suggested that I start adding more dairy products into his diet. She also told me to try a small amount of peanut butter on a cracker and see how he does with that. I think he'll like it if he's able to move it around in his mouth. If not, he'll be trying to work the peanut butter off the roof of his mouth. :)

Tuesday, August 3, 2010

Baby news

Little baby number two has been doing great! I went in for a 12 week doctor appointment a couple of weeks ago and got to listen to the heartbeat. She used the doppler machine on my belly. At first, we couldn't find the baby. Dr. NewMyer (my OB and the woman that delivered Landon) said she could hear the baby moving around in there, but couldn't find it. She searched for what felt like an eternity, and finally found it way down in my pelvis. I guess it was playing a game of hide-and-seek. :) The heartbeat was fast and she said it sounded good, which eased my mind.

We talked about the plans for this baby. I wondered if she was going to treat me as a high-risk case like she did with Landon. She reassured me that she felt like the chances of the same situation arising again were very low. The chances of getting a another baby like Landon are 1 in 100,000. She also told me that we found out very early with Landon (in the 3rd month I was pregnant), so if it was to happen again, we would find out in the next ultrasound, and then we would talk about being seen by a high-risk doctor. I was really happy to hear that she wasn't worried about it. It put my mind at ease. I was, however, pretty bummed that I wouldn't get as many ultrasounds with this baby as I did with Landon. (I got them every doctors appointment.) ;) I love watching them swim around in there.

I've been feeling better. I don't have anymore nausea (YEA!!!) and I've been getting my normal appetite back. I have been craving the flavor of pickles and mustard (but not always together). I got a Subway veggie sandwich the other day with both on it, and couldn't stop eating it. :) I was craving a lot of sweets at first, and caught myself. I don't want to get as big as a house! ;)

Monday, August 2, 2010

Baby somersaults

This week I am 15 weeks. Yesterday, while watching TV, I started to feel little flutters in my belly. I sat really still, waited and felt it again! This time it was like the baby was doing a flip in there. Every once in a while I'll get another little punch or push. It's so awesome to get to be reminded that there is a little one in there. It makes it more real everyday. :)

Sunday, August 1, 2010

Juice boxes are awesome!!!

We've recently been working with Landon drinking out of a juice box. We used to have to sit with him and hold the box for him and squeeze it to get it to come out. We worked up to closing his mouth around the straw. Then, we worked on telling him to "kiss" the straw to get him to pucker his lips a little to get the sucking in.

He finally caught on and has now learned that he's a big boy and can do it all by himself!!! The next step is getting him drinking from a bigger straw...

When we went to see Chelli this week, she was so excited to see his progress with the straw. She said that it will probably be harder for him to drink from a bigger straw because it requires more lip closer. To help us practice, she gave us a cup with a lid a regular sized straw. With the straw, she gave us this little piece to put into the bottom of the straw so when the liquid is sucked up into the straw, it won't go back down. It will hopefully make it easier for Landon, and he will want to practice more with it. We're always setting new goals for him to accomplish. :)